tag:blogger.com,1999:blog-8514840367387465829.post5156125079608762663..comments2022-12-01T21:17:22.823-08:00Comments on Living with CPT2: My First HospitalizationGary Shusterhttp://www.blogger.com/profile/09871534893289060677noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-8514840367387465829.post-91086089315396873032015-03-01T12:57:04.888-08:002015-03-01T12:57:04.888-08:00So happy to find your blog with all this great CPT...So happy to find your blog with all this great CPT 2 info! My 18 year old daughter was just diagnosed one year ago after a 4 day stay in the ICU for Rhabdo she got during her lacrosse team tryout week. She again made a trip to ER last week during the same tryout week only this time lucky that she got released the same day after 2 liters of IV hydration. We are now trying to learn more about living with and managing this disease so THANK YOU for all this great info! lmkuroskyhttps://www.blogger.com/profile/01044632393182524637noreply@blogger.comtag:blogger.com,1999:blog-8514840367387465829.post-51572919874642185072014-11-10T17:32:03.236-08:002014-11-10T17:32:03.236-08:00You absolutely cannot feel a high CPK. My son'...You absolutely cannot feel a high CPK. My son's CPK was 14,000 when he had no pain at all. At its worst it was 115,000. <br />Please keep in mind that CPK is an indicator of muscle tissue breakdown, not kidney function. It can alert providers that the kidneys may be in trouble but that is not the purpose of the test. BUN and Creatinine levels as well as GFR (glomerular filtration rate) are more indicators of kidney function. The doctors also watch liver function tests ALT and AST. During Michael's first crisis, his ALT and AST were over 3700 each and they are supposed to be under 40.<br />Please check out www.cpt2kids.blogspot.com if you want to see some of our journey!HopefulMomhttps://www.blogger.com/profile/06216315663744732174noreply@blogger.com