I stopped taking a statin and switched to a PCSK9 inhibitor. I'm taking 150 mg of Praluent. My LDL dropped dramatically, to around half of what it was before. Much more effective than the statin, and none of the muscle damage that was happening with the combination of a statin and CPT2.
However, Anthem Blue Cross is currently refusing to cover Praluent, and I can't afford to pay for it without insurance coverage. If I go back to a statin, I'm likely to end up in the hospital again. The last time, it was 6 days and probably cost the insurance company $100,000 or so. So I'm at a loss as to why they don't want to cover it. I'm still trying to make coverage happen.
Bottom line, though, is that if you can afford to switch to a PCSK9 inhibitor, you should definitely talk to your doctor about it. My CPT2 symptoms have dramatically improved on the PCSK9 inhibitor, and I'm not looking forward to having to get off of it and back on a statin. Hopefully the insurance company will do the right thing and I won't have to.
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