Friday, May 13, 2016

Is Gan Mao Ling a trigger?

About 2 weeks ago, for the first time in my life, I had a CPT2 episode without any identifiable trigger.   I keep a list of known CPT2 episode triggers online, but didn't see any that applied.  The episode was different from "normal" as well:  It was pain in the front, upper half of my legs.  It felt like the muscles were contracting on their own, almost like cramping, but they also hurt.  I wasn't sure it was a CPT2 episode.

A few days ago, the same symptoms returned.  This time, I checked my urine and found the protein levels were too high.  I went to the doctor, and I'm awaiting the results of my CK test.

In the meantime, I identified something that happened right before each of the two prior episodes:  I started to feel sick, and I took the herbal supplement "Gan Mao Ling".  Within about 12 hours of taking it, I was symptomatic with CPT2 (at least, I think it was CPT2).

The tricky thing about CPT2 is that mild episodes can feel a lot like other things -- exhaustion, cramping, too much exercise, etc.  I can't even say for sure that the supplement was a trigger, but I'm going to avoid it just in case.

The primary reason I'm blogging this one is so that it can be found by others with CPT2 who are considering taking the supplement.  If you do, please provide feedback.  I'm curious if others have the same experience.

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